For nearly two decades, Down syndrome was one of the least funded genetic conditions at our National Institutes of Health (NIH). The Global Down Syndrome Foundation (GLOBAL) has worked hard and successfully advocated with Congress and the NIH to increase Down syndrome research and medical care funding from $18 million in 2009 to $130 million in 2023.

The DeOndra Dixon INCLUDE Project Act, named in memory of GLOBAL’s beloved Ambassador and Jamie Foxx’s younger sister, DeOndra Dixon, will authorize Down syndrome research funding that continue to elongate life and improve health outcomes for people with Down syndrome.