The Harkin Summit brings together key champions and implementers from around the world to increase employment of people with disabilities.
Today, one in six Americans live with a disability, yet these individuals are not well represented in the workforce or the financial system. In order to expand community inclusion for people with disabilities, we must provide better financial tools and education.
People with disabilities are a critical part of the national conversation on diversity, equity, and inclusion. We can foster greater empowerment for this community by removing financial barriers and poverty-level limitations. People with disabilities should be able to invest in their long-term financial well-being.
For nearly two decades, Down syndrome was one of the least funded genetic conditions at our National Institutes of Health (NIH). The Global Down Syndrome Foundation (GLOBAL) has worked hard and successfully advocated with Congress and the NIH to increase Down syndrome research and medical care funding from $18 million in 2009 to $130 million in 2023.
The DeOndra Dixon INCLUDE Project Act, named in memory of GLOBAL’s beloved Ambassador and Jamie Foxx’s younger sister, DeOndra Dixon, will authorize Down syndrome research funding that continue to elongate life and improve health outcomes for people with Down syndrome.
The NDSS Adult Summit is headed to the West Coast! We are excited to welcome hundreds of individuals from across the country to Costa Mesa, CA, for three days of connection and educational sessions on a variety of topics that address adulthood and aging for the disability community.
SAVE THE DATE!
David Egan Guest Speaker
Author, Advocate, and Partner in Helping Create a Better World
Speaking Event and Mixer!
Friday, November 8th.
11-12:30
Room 5401, SLO Campus with Zoom access
https://cuesta-edu.zoom.us/j/4553979612?omn=81811432359#success
Cuesta and greater community invited.
Coast B.U.D.S Buddy Walk Keynote Speaker
https://coastalbuds.org/buddy-walk-activities/
Visits on Capitol Hill with CEO Commission
https://ceocommission.org/
David Egan will be delivering the Keynote Address for the Region 2 Developmental Disabilities Support Coordination Conference.
https://www.fairfaxcounty.gov/community-services-board/region
Speaking About Inclusion to Populous Global Architectural Design Firm
https://populous.com/
Special Olympics Research And Evaluation Consortium - Speaker on the Power of Inclusion in Health
https://www.specialolympics.org/what-we-do/research/presentations-and-publications/special-olympics-research-and-evaluation-consortium
Speaking at the Vienna Presbyterian Church’s 2nd annual Prom event for young people (ages 14 and up) with developmental differences and their invited guests. It will be held on Friday, April 26th at 5:30pm at Vienna Presbyterian Church located at 124 Park St NE, Vienna, VA 22180. Please join us for a complimentary evening of Dinner, Dancing, and Entertainment! Parents and caregivers are also welcome to stay on site in the Parents Lounge for their own celebration.
Speaking about Advocacy in his life to Harry's Employee Resource Group
David Egan is speaking at the 2024 NIH INCLUDE Investigators Meeting with Dr. Espinosa.
2024 NIH INCLUDE Investigators Meeting
Five Years of Transformational Down Syndrome Research and Plans for the Future
April 15-16, 2024
On April 4th, David and Kathleen Egan shared their advocacy journey.
You can watch the interview here: https://youtu.be/7lz5YKFaUJs
https://events.ds-int.org/13thWorldDownSyndromeDayConference#/watch?lang=en
ABC Features DSANV Mosaic District World Down Syndrome Day Event
David will be giving a presentation to the Golisano Fellowship in Developmental Disability Nursing Program on "The Power of Inclusion”
The Golisano Fellowship in Developmental Disability Nursing is a 12-month program designed to develop thought leaders in nursing who support and promote the health and well-being of persons with ID/DD across their lifespan and settings.
The goal of the Fellowship is to create nursing leaders in education, practice, and service who will work in partnership with cross-sector health systems and organizations to advance inclusive practices, foster innovation, promote health, and support self-determination to support wellness and close the health disparities gap among people with ID/DD.
https://www.sjf.edu/institutes/golisano-institute/fellowship/
Three days of connection and educational sessions on a variety of topics that address adulthood and aging for the community. This conference is a great educational opportunity for individuals with Down syndrome and other disabilities, family members, and professionals.
David is a speaker on the Advocacy Panel on Friday Nov 10th.
A gala celebration, dinner, and silent auction with keynote speaker David Egan, an award-winning and acclaimed self-advocate, author, and Special Olympian who is an alumnus of the Waisman Early Childhood Program.
https://www.waisman.wisc.edu/uw-event/gala/
https://www.globaldownsyndrome.org/global-acceptability-gala/
David Egan participated and advocated with the Virginia team on Capitol Hill.
https://ndss.org/down-syndrome-advocacy-conference
As a board member, David attended the preconference strategic meetings and presented together with NIH, Dr. Melissa Parisi, the importance of participating in NIH INCLUDE research. He also spoke with the Global Down Syndrome Foundation, Bryn Gelaro and David Tolleson, about his experience with medical research.
https://www.dsaia.org/index.php?option=com_jevents&task=icalrepeat.detail&evid=27&Itemid=115&year=2023&month=03&day=02&title=dsaia-2023-annual-leadership-conference&uid=c389d65a27a1b52410683ed0113a9676
David receives the Quincy Jones Award at the Global Down Syndrome Foundation.
https://bebeautifulbeyourself.org/quincy-jones-exceptional-advocacy-award/
